My mom made it through her surgery and is home! She has a foot long incision down her hip that's glued shut with tape over it, but she said her pain went from an 8 to a 2 just from the relief of having the new joint. Huzzah! I was ridiculously worried about her to … Continue reading Home Safe!
My mom began having hip pain and difficulties walking about three months ago, and it progressed so that she could barely stand even with a walker. She was in a LOT of pain. She had me check, and when I pressed where she said it hurt it went 'crunch'. Nothing in your hip should go … Continue reading EDS – Even I Can Tell Something’s Wrong Here
I've been pretty open about the fact that I have Ehlers Danlos Syndrome. While it's a minor annoyance or medium pain most of the time, sometimes it's a real problem. Like when my ribs slip out of place. For years, my brother (he's 6' 7"? 9"?) would hold out his arms, I would hook my … Continue reading Helpful Links: How to Put a Rib Back in Place
Ehlers Danlos Syndrome is everywhere! I've run across two Youtubers who have EDS, which is always interesting, because all of our experiences with this disorder are different. The first is Jessica Kellgren-Fozard, who has quite a few complications in addition to having to deal with the British healthcare and disability system. (Did you know, that … Continue reading YouTube EDSers!
We had a spat of nice, spring weather, and I was loving it... until a front moved through. Because Wisconsin. Temperatures dropped. The wind picked up. I had a combination of an allergy and pressure based headache and miserable joint aches that I could barely think through. It was awful. I ended up taking a … Continue reading A Front Moved Through and It Was Awful
I took some time off this last week to go up to the Twin Cities and visit my grandpa! My husband and my mom and I all drove up, about a six hour drive total. It was so much fun to see him! I took photos, but I don't share photos of people (other than … Continue reading Visiting Grandpa and Motility Problems
As of the current time, Auryn Hadley's 'Rise of the Iliri' series is my absolute favorite books series. Now, this does shift around a bit as some of my favorite authors release new books, but it's stayed pretty consistent for over a year. (And no, this is not an affiliate link. Regardless, BUUUUUUY IIIIIIT!) In … Continue reading Fanart for Auryn Hadley
I'm very proud to say that I adulted so hard this week I scheduled a dental appointment. I know, right? I haven't had a dental appointment since I was 18 barring my wisdom teeth being pulled and a cavity being filled at a free clinic. I just never had any insurance to cover it and … Continue reading A Real Adult and Everything
(Spoiler: I talk about pooping.) I've been sick since the Friday before last, starting out mildly enough with a stomach ache and culminating this Friday with vomiting, whenever I eat, heartburn, and terrible gut pains. No body aches. No fever. I was baffled until I talked to my mother, and she reminded me that I … Continue reading EDS and the Stomach That Wouldn’t
(And you LOST ONE?!?) I had myself a mini-crisis yesterday. You see, I wear Silver Ring Splints daily. They look like this: And this: And I'm losing weight. And losing weight makes my fingers smaller. At some point yesterday, I lost THE MOST IMPORTANT splint, the pointer finger tip in my writing triad. You know, … Continue reading Those Splints Cost HOW MUCH?