Ehlers Danlos Syndrome is everywhere! I've run across two Youtubers who have EDS, which is always interesting, because all of our experiences with this disorder are different. The first is Jessica Kellgren-Fozard, who has quite a few complications in addition to having to deal with the British healthcare and disability system. (Did you know, that … Continue reading YouTube EDSers!
We had a spat of nice, spring weather, and I was loving it... until a front moved through. Because Wisconsin. Temperatures dropped. The wind picked up. I had a combination of an allergy and pressure based headache and miserable joint aches that I could barely think through. It was awful. I ended up taking a … Continue reading A Front Moved Through and It Was Awful
I took some time off this last week to go up to the Twin Cities and visit my grandpa! My husband and my mom and I all drove up, about a six hour drive total. It was so much fun to see him! I took photos, but I don't share photos of people (other than … Continue reading Visiting Grandpa and Motility Problems
As of the current time, Auryn Hadley's 'Rise of the Iliri' series is my absolute favorite books series. Now, this does shift around a bit as some of my favorite authors release new books, but it's stayed pretty consistent for over a year. (And no, this is not an affiliate link. Regardless, BUUUUUUY IIIIIIT!) In … Continue reading Fanart for Auryn Hadley
I'm very proud to say that I adulted so hard this week I scheduled a dental appointment. I know, right? I haven't had a dental appointment since I was 18 barring my wisdom teeth being pulled and a cavity being filled at a free clinic. I just never had any insurance to cover it and … Continue reading A Real Adult and Everything
(Spoiler: I talk about pooping.) I've been sick since the Friday before last, starting out mildly enough with a stomach ache and culminating this Friday with vomiting, whenever I eat, heartburn, and terrible gut pains. No body aches. No fever. I was baffled until I talked to my mother, and she reminded me that I … Continue reading EDS and the Stomach That Wouldn’t
(And you LOST ONE?!?) I had myself a mini-crisis yesterday. You see, I wear Silver Ring Splints daily. They look like this: And this: And I'm losing weight. And losing weight makes my fingers smaller. At some point yesterday, I lost THE MOST IMPORTANT splint, the pointer finger tip in my writing triad. You know, … Continue reading Those Splints Cost HOW MUCH?
(And 3 Helpful Tips for You to Do the Same!) I know it's not always easy to be compliant with your med regime. You forget a dose or take it later than you intended. One med always makes you dizzy, so you can't take it right now because you need to drive somewhere. This med's … Continue reading 5 Reasons I’m Compliant with My Meds
(...and This Was the Right Choice for Us) I can't have kids. Well, 'shouldn't' is more accurate. I don't want to give anyone my Bipolar, depression, or Ehlers-Danlos Syndrome and then watch them suffer knowing I chose for them to suffer. It sounds a little strange, but how could I live with the guilt of … Continue reading We Chose Not to Have Kids…
(and not leave feeling frustrated!) Let's face it: medical appointments are a necessary evil, and if we're at all sick a frequent evil that leaves us stressed and annoyed. It's easy to forget things you wanted to bring up or ask about, and it's even easier to get flustered and forget what the doctor has … Continue reading 7 Ways to Get the Most Out of a Doctor’s Appointment