Home Safe!

My mom made it through her surgery and is home! She has a foot long incision down her hip that's glued shut with tape over it, but she said her pain went from an 8 to a 2 just from the relief of having the new joint. Huzzah! I was ridiculously worried about her to … Continue reading Home Safe!

YouTube EDSers!

Ehlers Danlos Syndrome is everywhere! I've run across two Youtubers who have EDS, which is always interesting, because all of our experiences with this disorder are different. The first is Jessica Kellgren-Fozard, who has quite a few complications in addition to having to deal with the British healthcare and disability system.  (Did you know, that … Continue reading YouTube EDSers!